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I am Joyia Marie West

I am a 39-year-old marketing professional, with a lifelong passion and gift of song, heart for Christ, love for family, great soul music and high heels...and I am living with lupus and end-stage kidney disease.

Ultimate Gift of Love

Dear Family & Friends,

Some of you may know that I have lupus and that it has progressed to end-stage kidney disease. Over time, my kidney disease has progressed, causing my kidneys to no longer have adequate functionality on their own. My options are dialysis treatments, which I currently undergo, or Kidney Transplantation, which I am currently on the list awaiting.

A Transplant would provide me with an opportunity to be restored in health, to live a longer, more normal life without the need for mandatory dialysis. However, finding a kidney for a transplant is not easy. Just ask the 100,000+ people on the waiting list. Some wait for years; many die while waiting. The average wait time is five years or more for a kidney from a deceased donor. However, there is another option: receiving a kidney from a living donor. Receiving the valuable gift of transplantation, would allow me to continue to live a full life, enjoying the things that I am most passionate about like Music Ministry, and sharing in rich time with my beloved family & friends.

Reaching out to family and friends to ask for your consideration in being tested for kidney donation is a huge ask, but greatly improves my chances of transplantation. Studies have shown that a living kidney donation typically lasts longer and has better functionality compared to that of deceased donors. It is my humble prayer that you will find it in your heart, as members of my support circle, to simply agree to be tested to see if you might be a match. Any further decisions to move forward with actual donation is totally and prayerfully up to your individual choice/discretion, and will not be attached to any pressure either way. I warmly and hugely appreciate the simple act of just being tested.

You might not know a lot about living donation – I know I didn’t before kidney disease affected my life. Understandably, some people are afraid about the surgery and what living with one kidney will mean for them. Here’s a few quick facts:

  • You only need one kidney to live a healthy, long life.
  • Most donor surgery is done laparoscopically, meaning through tiny incisions.
  • The recuperation period is usually fairly quick, generally two weeks.
  • The cost of your evaluation and surgery will be covered by my insurance. The hospital can give you extensive information on this.
  • You will have a separate team of healthcare professionals to evaluate you as a living donor. Their job is to help you understand the risks and benefits and look out for YOUR best interests.

You can also learn more about living donation on the National Kidney Foundation (NKF) website: www.kidney.org/livingdonation or by contacting the NKF’s free, confidential helpline at 855.NKF.CARES (855.653.2273) or [email protected]. If you want to talk to someone who’s already donated a kidney, NKF can also help.

Thank you for taking the time to read my story.If donating a kidney to me is something you would like to consider, I would be happy to tell you more about my story and explore the process of determining if you are a match for me. To start the process, please visit henryfordkidneydonor.com  and complete the “Living Kidney Donor” application. You can also contact my transplant center with any questions directly at 313.916.7893.

Consider being a part of the National organ donor program, and you can also help me by sharing my story with everyone you know…. at the very least, I want to bring awareness to kidney disease and organ donation. I am hopeful that these efforts will help myself and those hundreds of thousands of people like me receive kidneys sooner, and encourage others to consider how they may help.

Love Always
Joyia

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